This page describes open science resources useful for the RAO (Rare as One) grantee community; please also see our CZI grantees page for general resources available to our grantees. Information presented here may also be useful for other individuals who work to engage and/or support researchers and would like literary in open science approaches to advocate for their usage.
The following resources are platforms, software, and projects that support open science practices among biomedical researchers:
This section helps answer common FAQs from patient advocacy groups and organizations engaging in patient-driven research. Questions and answers are currently under development; please see our Support page to share requests for information with us.